WELCOME

Welcome to the Marfans Research Foundation Ireland. We are dedicated to raising awareness, supporting families, and funding research into Marfan Syndrome, a rare genetic condition affecting connective tissue. Together, we aim to improve understanding, diagnosis, and care for those living with Marfan Syndrome in Ireland.

About Us

mission

Our mission is to fund research, provide information, and support those affected by Marfan Syndrome. We work to ensure individuals and families have access to resources, guidance, and community support.

donate

Your support makes a difference. Donations help fund vital research, support services, and awareness initiatives. Every contribution helps us move closer to better outcomes for those with Marfan Syndrome.

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INFORMATION

Learn about Marfan Syndrome, its symptoms, and how it can be managed. Access practical information for families, healthcare professionals, and the wider community.

UPCOMING EVENTS

SUPPORT OUR CAUSE

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WHAT PEOPLE SAY

Testimonials

Geraldine McGrath, Founder

“Marfans Research Foundation was born from our family’s journey through life-saving heart surgeries and the profound impact Marfan syndrome has had on our lives. Having experienced both loss and hope, I truly believe that research saves lives.

The unwavering support of our community has been extraordinary, with every cent raised going directly to research—bringing hope to families like ours and to future generations.”

Michael McGrath, Founder

“I know first-hand the importance of Marfan syndrome research. I have supported my wife Geraldine and our sons through their Marfan journey—from clinic visits to major open-heart surgeries—sharing in both the challenges and the relief that follows successful treatment.

I fully endorse Marfans Research Foundation and believe research is vital in improving outcomes and giving hope to families now and in the future.”

Marfan Patient

“I was diagnosed with Marfan syndrome at a young age and monitored through Crumlin Children’s Hospital and later the Mater Hospital. I had surgery at 17 in June 2005. Thanks to regular check-ups, I now live a full, active life without restrictions. Having a family of my own, I see how important research is for the future. Marfans Research Foundation is doing vital work funding research and raising awareness locally.”