Events

Ridley’s Great Baddow Charity Races May 2013

The one and only Sr Philomena Purcell participated again this year accompanied by her niece Julia Purcell. Between them, this year they raised a whopping €1,860. This was Philomena’s ninth year, raising €12,336 to date. All at Marfan Research are really thankful to Philomena and Julia and the unrelenting generosity of their sponsors.

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Posted in 2013

17th to 24th December 2011, Christmas Bag Pack at Super Value Supermarket, Morgan St, Waterford

A huge thanks to all the loyal bag packers and generous Super Value customers who together raised €8,720.

Posted in 2012

October 2012 – In Memory of Eileen Purcell

Family and friends of Eileen generously donated €342 for Marfan research. Eileen was a loyal and willing supporter of marfan research. We appreciate your generosity.

Posted in 2012

September 2012 Annual Pony and Trap Drive

South Kilkenny Pony and Trap Drive promises to be another spectacular drive lead by Billy Meany, Ballinerla, Kilmacow, Co Kilkenny. We hope the weather will be kind to the drivers and spectators alike. Watch this space for a full report. This will be our eight annual drive raising over €43,000 to date.

Posted in 2012

4th June 2012 Dublin City Women’s Mini Marathon

The old reliables Michael and Geraldine participated again this year for the ninth time on behalf of marfan research. This year they raised €628 bringing the total raised to date to €10,476.

Posted in 2012

Ridley’s Great Baddow Charity Races May 2012

Sr Philomena Purcell participated again this year on behalf of our charity. This was Philomena’s eight year raising €8.631 to date. Philomena raised €1,558 this year included in above amount. Philomena is a loyal fundraiser for marfan research. All at Marfans Research Foundation are extremely grateful to Philomena and the extraordinary generosity of her sponsors.

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Posted in 2012

29th November 2011, Table Quiz at The Showboat

The annual Table Quiz at The Showboat was enjoyable and successful raising €433 on the night. A big thank to the Showboat and supporters.

Posted in 2011

15th to 24th December 2011, Christmas Bag Pack at Super Value Supermarket, Morgan St, Waterford

The Bag Pack was enjoyable and successful. The loyal bag packers and some new volunteers did a fantastic job. We are really thankful to Super Value Management for the opportunity to raise much needed funds . The courtesy of the staff is outstanding. The biggest thank you goes to the generous customers. Together, we raised the unbelievable amount of €10,080.

Posted in 2011

November 2011, Kilmacow Poker Classic

This event was organised by Paddy Maguire in aid of three local charities – St Vincent De Paul Society, The Jonah Project and The Marfans Research Foundation. We are very grateful for Paddy’s generosity. Margaret and Jack Maguire regularly bag pack on our behalf when required to do so. Paddy donated €100 for Marfan Syndrome Research from this successful event.

Posted in 2011

4th November 2011, Presentation on Marfan Research and cardiac surgery

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Marfan Syndrome and Cardiac Surgery Information Evening at Kilmacow Community Centre was most interesting and informative. Kieran Mc Grath welcomed Prof Mark Redmond, Dr Darren Mc Laughlin and Dr John Byrne. Kieran spoke about how the Mc Grath family first encountered Prof Redmond. Geraldine Mc Grath’s first open heart surgery was unsuccessful and as the late Mr Maurice Nelligan was retiring, he handed her medical notes over to Prof Redmond. Mr Nelligan strongly endorsed Prof Redmond. Prof Redmond performed successful surgery on Geraldine and subsequently three of Geraldine and Michael’s sons. Prof Redmond gave an update on Marfan research in Ireland and how the funds raised are spent. He graciously acknowledged the generosity of people in the south Kilkenny and Waterford area. Prof Redmond spoke in some detail about marfan surgery. He then went onto speak about Bicuspid Valve Disease which is a serious medical condition which he encounters more and more. This requires open heart surgery too.

Dr Darren McLauglin spoke about the current marfan research on mice in Ireland. He spoke about the importance of beta-blockers in controlling blood pressure in marfan patients. Dr John Byrne spoke about his part in marfan research and outlined how they presented a marfan research paper at the Marfan Conference in America which was subsequently published. This is a huge achievement for such a small country as Ireland.

There was a lively question and answer session which was most interesting. This was a unique opportunity with three specialists present, to impart valuable advice. Kieran Mc Grath acknowledged the generous support Marfan Research receives from the local community. He stated the main annual fundraisers were The Pony and Trap Drive organised by Billy Meaney and Mary Corcoran and The Christmas Bag Pack at Super Value, Morgan St, Waterford. Kieran also welcomed Dr John Enright, Mullinavat and Suzanne Redmond. He stated the total amount raised for marfan research to date was €213,350 Prof Redmond was presented with a cheque for €30,000 on the night. It was a successful and enjoyable evening and ended with a cuppa and a chat.

Posted in 2011